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| Me and my favorite nurse |
Wholly Guacamole.........talk about a funk - the good news is the headaches didn't show up until day 5 this time and they are less frequent than during the Folfox-3. The fatigue was seemingly insurmountable starting on Wednesday when the pump and needle were removed ... sorry to all those i missed on thanksgiving...i woke for breakfast at 11:00 and crashed...woke for dinner at 6:00 and crashed...woke up on Friday morning and battled nausea and fatigue all day... Saturday was much the same except for a little break. Today has been alot better so now i need to start rehydrating as i think the headaches are probably from dehydration - between Alf (my illeostomy...if you've ever seen one the name seems a given) and the chemo, keeping in fluids seems to be quite a logistical problem since the small intestine does not absorb water.... seems nothing can be straightforward..
For all my medical followers - - blood counts are holding so that is good news, slight anemia from the chemo but to be expected, iron tests were good so i did not need an iron injection, reduced the Oxaliplatin to minimize long term neuropathy side effects to accepted levels within the historical model....thanks for following and monitoring my goings on...we really appreciate it... there is a very large bbq waiting for you come August... and this time i will be able to eat.
For those that have been asking what is "Folfox" - refer to the following:
The combination chemotherapy regimen known as FOLFOX consists of the following drugs:
- FOLolinic acid (leucovorin)
- Fluorouracil (5-FU)
- OXaliplatin (Eloxatin)
Folfox-5 - 12/5/11
Folfox-6 - 12/19/11
Folfox-7 - 1/4/12
Folfox-8 - 1/18/12
Folfox-9 - 1/30/12
Prayers out to Di and her family during this difficult time - your mom is going to do great!!!
Shout out to the Kathy and Joe- can't wait to see your pics of the Great Barrier Reef.
Stay Healthy -
Best
C-
5 comments:
A charming couple! Glad to see you are staying positive through all this. Just keep thinking of Falmouth...Love to you all, Cindy
and pray tell what is Nurse Amy to do when this is all over? Love, Mom
I guess I'll have to be satisfied with being #2 favorite nurse, although I may even be taking a #3 or 4 behind the Carroll women.....:) I remember from my days at the Farber that lousy 5FU.......you know what the F U stands for, no???
xoxo always.
Di
Di - you are securely in the 2 spot. Hope all goes well with your mom tomorrow - sounds like her spirits are up so that's positive.
best
C-
Fantastic post, I really look forward to updates from you.
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